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Data dictionary : SarcomaBCB


File number
Type : Free valueContent : TEXTMandatory : YesMultiple values : NoUnique : Yes
Description : The unique file number the patient has in his centre

Birth date
Type : Free valueContent : DATEMandatory : YesMultiple values : NoUnique : No
Description : The patient's birth date

Sex
Type : ConstrainedContent : TEXTMandatory : YesMultiple values : NoUnique : No
Description : The patient's gender
Possible values :
Female, Male

Centre (ConticaBase)
Type : ConstrainedContent : TEXTMandatory : YesMultiple values : NoUnique : No
Description : Centre ConticaBase
Possible values :
MEDIPATH Toulouse, Cabinet de Reims, Centre Patho de Metz, Cabinet de Douai, Cabinet d’Amiens, IHP Nantes, Centre Patho Dijon, Cabinet de la Roquette, Cabinet Mathurin, Lyon CLB, Hôp. Gabriel Montpied, CHRU De Dijon, Hôp. Pontchaillou, Hôp. Charles Nicolle, Hôp Pasteur, CHU Amiens, Labo. de Limoges, Service d'anapath de Brest, Cy-Path, Cabinet de Rennes, Villejuif IGR, Milan INT, Padova UNIPD, KLEUVEN, CHRU Lille, Saint-Louis, Bergonié, Curie, Mannheim, Nice CAL, Dijon CGFL, Caen CFB, Marseille IPC, Nancy ICL, Lille COL, Lausanne, Montpellier ICM, Angers ICO, Nantes ICO , IUCT Toulouse, Strasbourg CHU, Bruxelles, CJP, Paris Henri Mondor, Warsaw Cancer Center, Timone, Cochin, Rennes CEM, Heidelberg, Bonn, Tübingen, Haut-Lévèque Bordeaux, LUMC, Ambroise Paré APHP, Nantes CHU, Tours Trousseau, CPS Strasbourg, CHRU Montpellier, Limoges Dupuytren, Rouen CHB, Lyon IHOP, St Etienne ICLN-CHU, Reims IJG, Reims CHU, Besançon CHU, La Réunion CHU, Tenon, Bicêtre, Pitié Salpétrière, GHSN - LYON, Hôp. Civil Strasbourg, CHRU Caen, CHRU Brest, CHU Nancy, Rangueil Toulouse, Purpan Toulouse, Centre Hospitalier - Lille, CHRU Angers, Hôp. Nord Marseille, MEDIPATH (Frejus), APHP Bichat, APHP Saint-Antoine, Bordeaux Pellegrin, Lyon Edouard Herriot, CHR ORLEANS, Nice CHU, Cabinet Bièvres, CHU POITIERS, OUEST PATHOLOGIE, DIAG (Nice), GRP 2 RIVES, HPL, Centre François Baclesse Luxembourg, CHU ESTAIN , MEDIPATH (Toulon)

Creation date patient
Type : Free valueContent : DATEMandatory : YesMultiple values : NoUnique : No
Description : The date when the patient has been created in the database

Significant previous history
Type : ConstrainedContent : TEXTMandatory : NoMultiple values : YesUnique : No
Description : No: no significant previous historyNF1: presence of neurofibromatosis type 1 or Recklinghausen diseaseNF2: presence of neurofibromatosis type 2Radiation therapy: tumour developed in a previously radiated areaLymphoedema: tumour developed on a preexisting lymphoedemaGardner: presence of a Gardner syndromLi Fraumeni: presence of a Li Fraumeni diseasePrevious cancer: the patient has previously developed another cancer different from the current tumourOther: other significant previous history with a possible link with the current tumour
Possible values :
No, Previous cancer, NF1, NF2, Gardner syndrome, Li Fraumeni syndrome, Retinoblastoma syndrome, Immunodepressed - HIV, Immunodepressed - other, Ollier disease, Maffucci syndrome, Paget disease, Multiple osteochondromas, McCune-Albright syndrome, Rothmund-Thomson syndrome, Werner syndrome, Cherubism, Other genetic disease, Other, Unknown, Familial GISTs, Stratiakis-Carney dyad, Carney Triad, Other malignancy in family

Date of last contact
Type : Free valueContent : DATEMandatory : NoMultiple values : NoUnique : No
Description : Date of the last follow up evaluation or date of death

Significant previous history detail
Type : Free valueContent : TEXTMandatory : NoMultiple values : NoUnique : No
Description :

Patient information
Type : ConstrainedContent : TEXTMandatory : NoMultiple values : NoUnique : No
Description : Consent information
Possible values :
Uninformed, Addressed mail, No opposition, Opposition, Consent

Initials
Type : Free valueContent : TEXTMandatory : YesMultiple values : NoUnique : No
Description : Patient initials : 4 characters (2 of Lastname, 2 of Firstname)Attention to compound names

Centre (RRePS)
Type : ConstrainedContent : TEXTMandatory : YesMultiple values : NoUnique : No
Description : Centre RRePS
Possible values :
Cabinet de Rennes, KLEUVEN, MEDIPATH Toulouse, Mannheim, Cabinet de Reims, Centre Patho de Metz, Lausanne, Cabinet de Douai, Nantes ICO , Cabinet d’Amiens, Bruxelles, IHP Nantes, Warsaw Cancer Center, Centre Patho Dijon, Heidelberg, Cabinet de la Roquette, Bonn, Cabinet Mathurin, Tübingen, LUMC, Lyon IHOP, St Etienne ICLN-CHU, Reims IJG, Reims CHU, La Réunion CHU, Tenon, Bordeaux Pellegrin, Bicêtre, Lyon CLB, Villejuif IGR, Hôp. Gabriel Montpied, CHRU De Dijon, Hôp. Pontchaillou, Hôp. Charles Nicolle, Hôp Pasteur, CHU Amiens, Labo. de Limoges, Service d'anapath de Brest, Cy-Path, Milan INT, Padova UNIPD, Saint-Louis, Bergonié, Curie, Nice CAL, Dijon CGFL, Caen CFB, Marseille IPC, Nancy ICL, Lille COL, Montpellier ICM, Angers ICO, IUCT Toulouse, Strasbourg CHU, CJP, Paris Henri Mondor, Timone, Cochin, Rennes CEM, Limoges Dupuytren, Tours Trousseau, Rouen CHB, Nantes CHU, Besançon CHU, Pitié Salpétrière, Haut-Lévèque Bordeaux, GHSN - LYON, Ambroise Paré APHP, CPS Strasbourg, Hôp. Civil Strasbourg, CHRU Caen, CHRU Brest, CHRU Montpellier, CHU Nancy, Rangueil Toulouse, Purpan Toulouse, CHRU Lille, CHRU Angers, Hôp. Nord Marseille, MEDIPATH (Frejus), APHP Bichat, APHP Saint-Antoine, Lyon Edouard Herriot, CHR ORLEANS, Nice CHU, Cabinet Bièvres, CHU POITIERS, OUEST PATHOLOGIE, DIAG (Nice), GRP 2 RIVES, HPL, Centre François Baclesse Luxembourg, CHU ESTAIN , MEDIPATH (Toulon)

Vital status
Type : ConstrainedContent : TEXTMandatory : NoMultiple values : NoUnique : No
Description : Vital status at last contact
Possible values :
Alive, Dead

Cause of death
Type : ConstrainedContent : TEXTMandatory : NoMultiple values : NoUnique : No
Description : Cause of death
Possible values :
- Dead of this cancer
- Primary cancer
- Metastatic disease
- Dead of other cancer
- Dead of treatment complication
- Dead of other cause
- Unknown

Lost of follow-up
Type : ConstrainedContent : TEXTMandatory : NoMultiple values : NoUnique : No
Description : Lost of follow-up
Possible values :
No, Yes

Other cancer
Type : ConstrainedContent : TEXTMandatory : NoMultiple values : NoUnique : No
Description : Has the patient another cancer
Possible values :
Yes, No, Unknown

Date of death
Type : Free valueContent : DATEMandatory : NoMultiple values : NoUnique : No
Description :

Diagnosis during pregnancy
Type : ConstrainedContent : TEXTMandatory : NoMultiple values : NoUnique : No
Description : Diagnosis during pregnancy (CALG network enrollment)
Possible values :
Yes, No

Quality control NetSarc
Type : ConstrainedContent : TEXTMandatory : NoMultiple values : NoUnique : No
Description : Quality control NetSarc performed
Possible values :
Yes, No

Date of control
Type : Free valueContent : DATEMandatory : NoMultiple values : NoUnique : No
Description : Date of quality control

Centre (NetSarc)
Type : ConstrainedContent : TEXTMandatory : YesMultiple values : NoUnique : No
Description : Centre NetSarc
Possible values :
KLEUVEN, MEDIPATH Toulouse, Saint-Louis, Mannheim, Cabinet de Reims, Centre Patho de Metz, Lausanne, Cabinet de Douai, Cabinet d’Amiens, Bruxelles, IHP Nantes, Paris Henri Mondor, Warsaw Cancer Center, Centre Patho Dijon, Heidelberg, Cabinet de la Roquette, Bonn, Cabinet Mathurin, Tübingen, LUMC, St Etienne ICLN-CHU, Haut-Lévèque Bordeaux, GHSN - LYON, Ambroise Paré APHP, CPS Strasbourg, Hôp. Civil Strasbourg, CHRU Montpellier, CHU Nancy, Rangueil Toulouse, Purpan Toulouse, CHRU Lille, CHRU Angers, Hôp. Nord Marseille, MEDIPATH (Frejus), APHP Bichat, APHP Saint-Antoine, Bordeaux Pellegrin, Lyon Edouard Herriot, Villejuif IGR, Hôp. Gabriel Montpied, CHRU De Dijon, Hôp. Pontchaillou, Hôp. Charles Nicolle, Hôp Pasteur, CHU Amiens, Labo. de Limoges, Service d'anapath de Brest, Cy-Path, Milan INT, Padova UNIPD, Cabinet de Rennes, Lyon CLB, Bergonié, Curie, Nice CAL, Dijon CGFL, Caen CFB, Marseille IPC, Nancy ICL, Lille COL, Montpellier ICM, Angers ICO, Nantes ICO , IUCT Toulouse, Strasbourg CHU, CJP, Timone, Cochin, Rennes CEM, Limoges Dupuytren, Tours Trousseau, Rouen CHB, Lyon IHOP, Nantes CHU, Reims IJG, Reims CHU, Besançon CHU, La Réunion CHU, Tenon, Pitié Salpétrière, CHRU Caen, CHRU Brest, Bicêtre, CHR ORLEANS, Nice CHU, Cabinet Bièvres, CHU POITIERS, OUEST PATHOLOGIE, DIAG (Nice), GRP 2 RIVES, HPL, Centre François Baclesse Luxembourg, CHU ESTAIN , MEDIPATH (Toulon)

Centre (ResOS)
Type : ConstrainedContent : TEXTMandatory : YesMultiple values : NoUnique : No
Description : Centre ResOS
Possible values :
Lyon CLB, Warsaw Cancer Center, Cy-Path, Lyon Edouard Herriot, Lyon IHOP, Mannheim, Marseille IPC, MEDIPATH (Frejus), Milan INT, LUMC, Limoges Dupuytren, Lille COL, Lausanne, Labo. de Limoges, MEDIPATH Toulouse, La Réunion CHU, KLEUVEN, IHP Nantes, Montpellier ICM, Nancy ICL, Saint-Louis, Service d'anapath de Brest, St Etienne ICLN-CHU, Tenon, IUCT Toulouse, Tübingen, Villejuif IGR, Rouen CHB, Rennes CEM, Nantes ICO , Nice CAL, Padova UNIPD, Paris Henri Mondor, Pitié Salpétrière, Purpan Toulouse, Reims CHU, Reims IJG, Hôp. Pontchaillou, Hôp Pasteur, Angers ICO, Centre Patho de Metz, Centre Patho Dijon, Caen CFB, Cabinet de la Roquette, Cabinet d’Amiens, Cabinet de Rennes, Cabinet de Reims, Cabinet Mathurin, Cabinet de Douai, Bruxelles, Bonn, Bicêtre, Besançon CHU, Bergonié, Ambroise Paré APHP, APHP Saint-Antoine, APHP Bichat, CHRU Angers, CHRU Brest, GHSN - LYON, Curie, Dijon CGFL, Haut-Lévèque Bordeaux, Heidelberg, Hôp. Civil Strasbourg, Hôp. Nord Marseille, Hôp. Charles Nicolle, Hôp. Gabriel Montpied, CPS Strasbourg, CHRU Montpellier, CJP, CHRU Caen, CHRU De Dijon, CHU Amiens, Strasbourg CHU, Timone, Cochin, Tours Trousseau, Nantes CHU, CHU Nancy, Rangueil Toulouse, CHRU Lille, CHR ORLEANS, Bordeaux Pellegrin, Nice CHU, Cabinet Bièvres, CHU POITIERS, OUEST PATHOLOGIE, DIAG (Nice), GRP 2 RIVES, HPL, Centre François Baclesse Luxembourg, CHU ESTAIN , MEDIPATH (Toulon)

Quality control Conticabase
Type : ConstrainedContent : TEXTMandatory : NoMultiple values : NoUnique : No
Description :
Possible values :
No, Yes

Date of control
Type : Free valueContent : DATEMandatory : NoMultiple values : NoUnique : No
Description :